Latest News from The Foundation

January 12, 2017

A children’s book, explaining PSP and other disorders.

One of our community,Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taki...

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January 10, 2017

An article by one of our community

One of the CurePSP community has written this beautiful article on the intricacies of finding love again. Article by Joanna McFarland Owusu.Poste...

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December 14, 2016

13-Year-Old Abby Sayre Starts CBD Fundraiser In Memory Of Grandmother Mary Kay

Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow.Mary Kay was diagnosed with Corticobasal Degeneration (CBD). C...

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December 14, 2016

President Obama Signs 21st Century Cures Act

It is official! The 21st Century Cures Act has been signed into law by President Barack Obama.  “We’re tackling cancer, brain disease,...

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December 12, 2016

NINDS/NIH/NIA Funding Opportunity Announcement

NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application in...

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December 05, 2016

CurePSP receives $200,000 from Nesbitt Charitable Foundation to fund two studies.

CurePSP donor funds two innovative studies of PSPNesbitt grant supports research into both care and cure Sarah Boone NesbittNew York, NY (Novembe...

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November 29, 2016

Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients

Ask a Doctor: Dr. Brent Bluett on PSPby Sylvia Rupani-SmithVery few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP,...

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November 11, 2016

2016 CurePSP International Research Symposium

2016 CurePSP International Research Symposium            October 27, Jersey City, NJ — Sta...

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November 11, 2016

2016 CurePSP International Research Symposium

2016 CurePSP International Research Symposium            October 27, Jersey City, NJ — Sta...

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October 21, 2016

PSP on the front page of the New York Times!

Sylvia Rupani-Smith, long-time friend of CurePSP and strong advocate for the cause, brings PSP awareness to the mainstream media with her article abou...

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October 13, 2016

CurePSP Women’s Luncheon, New York, NY

In honor of Women and Prime of Life Brain Disease Research, CurePSP recently brought together the most eminent investigators and accomplished women to...

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October 10, 2016

New York Opens First Support Group!

We are very happy to announce our first support group in New York! Our New York Support Group Leader Training sessions in August were a great suc...

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October 10, 2016

First time fundraisers raise over $32,000!

Wine in the Hill CountryWe wish to congratulate Kary Cataldi for a hugely successful wine tasting event in Honor of Mark Witt on Saturday, Octobe...

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October 07, 2016

The role of caregiver; Kathryn Leigh Scott

Originally printed in The Timberjay.By Jodi Summit.Growing up on a small family farm outside of Minneapolis, Kathryn Leigh Scott loved to write and pu...

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September 13, 2016

UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s Disease

UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s DiseaseJun 24, 2016|a GenomeWeb staff reporter NEW YORK (GenomeWeb...

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August 24, 2016

CurePSP Receives Matching Grant Challenge for Genetics Research

Friedman family has committed up to $600,000New York, NY (June 29, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of li...

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August 24, 2016

CurePSP receives second matching grant from the Light Of Day Foundation

Leading worldwide music tour benefits neurodegeneration causes New York, NY (August 17, 2016) — CurePSP, the leading nonprofit advocacy organizat...

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August 09, 2016

Jennings Kroemer Putt For PSP

On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana.The day was a huge success, and CureP...

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